About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, October 1, 2012

Parkinson’s puts you to the test

Parkinson’s can really put you to the test and becoming forgetful tries the patience of all around you. It is highly frustrating not being able to do what I once could, and the realization can suddenly bring out sharp words that normally would not be uttered, which are not aimed at any particular individual, but rather at the disease itself. Unfortunately anyone in the firing line gets shot at even if not deserving. The entire scary metamorphosis that a Parkinson’s patient goes through as the disease ravishes  one’s brain and body is beyond imagination, and terribly harsh for family and friends as they watch the person they once loved slowly change before their very eyes. In contact with other fellow sufferers, I know I am not alone when it comes to adjusting to new circumstances. I realise that I can’t do what I used to, but somehow this doesn't always register, and I’m still under the impression that I can whip up a three course meal in a flash, whereas in reality, it takes me all day just to make one simple dish, or bake a solitary cake. It’s not a matter of being in denial, but it’s just extremely hard to fully embrace and comprehend my lack of ability in areas where I was once so competent. 

1 comment:

  1. Yes Elaine it is terrible knowing that I can’t do this anymore and many other things. There are also things that I will never do or feel again in my life. This is sometimes very hard to deal with or describe to others. The feeling and not to talk about the understanding. On the other hand I feel that God gave me what I have so I can help others in the way I do witch gives me satisfaction and I am always thankful that I am not worse than I am as there is always someone much worse than me. For that I thank God. I wish you well and strong and happy and anything else I can wish you.
    A wish for everyone else out there to be well and happy with a sense of humor, it always helps.