About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, October 29, 2012

Why me?

Having been born with a chronic disease, I have always taken care of my body, and not wanting to sound like a goody two shoes or a prude, I have never smoked a cigarette in my life, I wasn't a curious youth so never took drugs, I didn't enjoy alcohol and it was of no interest to me. My diet when growing up was entirely wholesome home cooked food, some of which was grown in our own garden, and spending much of my youth outside in the fresh air, sailing in particular, I don’t think I could have had a healthier upbringing. Yet struck down at the age of 44 with an aggressive form of Young On-set Parkinson’s, clearly no amount of “clean living” can prevent certain diseases emerging. Whether a disease is inherent in one’s DNA or from our modern day toxic environment – it’s still not clear. It serves no purpose thinking “if only” or “why me”, and coming to terms with something as life changing as Parkinson’s, is to my mind, the only way forward. I continue to fight this rotten disease and refuse to give in, but at the same time accept its part of my life whether I like it or not. I have to adjust my lifestyle to the ever changing conditions as this degenerative disease runs its course. As if driving a car with no brakes, I cannot stop Parkinson’s, but I can grab tightly the steering wheel and maintain to some degree control of my journey.

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