I was talking with a friend and she asked me "Which of the five
senses would you miss the most?" A strange but thought provoking question,
I pondered a while. Having Parkinson's I've already lost my sense of smell.
Sometimes this can be a good thing, especially when living in the country, cow
sheds and chicken coops, become rather pungent in hot weather, or when our large dog sitting right next to us, passes gas and has the cheek to look
slyly out of the corner of one eye as if to say "it wasn't me!" But
there are many wonderful smells I miss, such as a cake baking in the oven, a
good aged wine, the smell of flowers, or the unforgettable smell of a new born
baby.
I can't even begin to imagine losing my voice, but if I lost the ability
to speak, my long suffering husband would probably heave a huge sigh of relief
for generally I don't stop talking! But seriously the loss of communication bares
huge ramifications and a particularly frightening one, if hospitalized.
To lose one's sense of taste would be very upsetting and no doubt lead
to weight loss as having a huge effect on one's appetite reducing the
incentive and desire to eat. The only up-side would be resulting in a great
slender figure, but this is too high a price to pay for vanity.
Losing one's sense of hearing I should imagine would impede one's social
abilities, feeling isolation as one is cut off from the world.
One could learn to lip read; most films and television programmes have subtitles,
but to lose one's hearing would without doubt be a serious loss effecting one's
life substantially.
However, to me personally, the loss of sight would without doubt be the
most devastating and life changing. The thought of not seeing the faces of
those I love and hold dear, without having independence of going places alone,
unsure of every step even in my own home, no films or books, missing out on all
the beauty that nature bestows on this world we often take for granted; I shudder
to think how dark and insular life would become.
So maybe living with Gaucher and Parkinson's isn't so bad. It could be a lot worse that's for sure. Be grateful for what you have and count your blessings. Take a look at this astounding clip about Brain-Computer Interface, showing how technology is advancing by leaps and bounds. Maybe a cure for Parkinson's is closer than we think!
So maybe living with Gaucher and Parkinson's isn't so bad. It could be a lot worse that's for sure. Be grateful for what you have and count your blessings. Take a look at this astounding clip about Brain-Computer Interface, showing how technology is advancing by leaps and bounds. Maybe a cure for Parkinson's is closer than we think!
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