About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, April 13, 2018

The Pros & Cons of Duodopa

Like everything in life, there are good things versus bad, pros and cons and as many a Parkinson’s patient will tell you, there are “on” and “off” times that get annoyingly worse as the disease progresses.

For example, one of Duodopa pluses, is being able to eat at whatever time I want. I no longer have countless alarms going off on my mobile phone, reminding me to take my pills, and waiting approximately 45 minutes between taking a Dopicar tablet and eating (in particular protein such as meat, chicken or cheese). All my family and friends were very understanding and accommodated my rigid eating times which allowed me to get the optimum result from the daily regime of Parkinson’s medications.

It’s one thing to control meal times in one’s own house, but quite another when you have been invited to someone’s home or are eating at a restaurant. It would be the height of rudeness to hurry one’s host with serving on time, and often in the past I have had to forgo eating as I was more concerned that my pills were given the best possible chance of working. It can even get difficult in a restaurant or cafe, and if the service is slow, I can miss the window of opportunity to eat a healthy meal containing protein.

I am often teased in our family about how my stomach can tell the time. Perhaps I swallowed a clock when I was young?! But I doubt this very much, and think the explanation is more to do with DNA, as my brothers and a cousin of mine, all have this internal clock and need to eat at regular times.

Duodopa is not a pill, and therefore administered in a completely different manner, bypassing the stomach altogether.

1 comment:

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