About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, April 27, 2018

There’s always something new to learn.

I had a pretty rough time last week, which prevented me from writing my blog.
The cold winter weather, in particular the rainy season has a huge effect on my bones, especially the joints. The pains are made worse by Parkinson’s dyskinesia and dystonia which constantly shake my delicate painful bones. In these circumstances, I rely on morphine tablets, relieving the pain so it becomes bearable.

Constipation is a very common problem when suffering from Parkinson’s disease and I was told when Duodopa is administered by a pump, it is important not to be constipated otherwise the medication won’t work properly. What I did not realise was that having diarrhea is just as bad, for the Duodopa is literally flushed straight out of the system.

This past week has been yet another learning curve, discovering this information the hard way, it was as if the Duodopa had just stopped working and I was thrown into a permanent “off” state. I have been on the Duodopa pump for six months now, but clearly there are things I still don’t know.

I wish you all a relaxing good weekend, but most of all, good health.

1 comment:

  1. It's a steep learning curve with this condition. I'd heard
    there was no pain with Parkinson's. I can relate to the
    dystonia/joint pain which feels like my bones are pulling
    apart. Thank you for your honesty.