I had a pretty
rough time last week, which prevented me from writing my blog.
The cold
winter weather, in particular the rainy season has a huge effect on my bones,
especially the joints. The pains are made worse by Parkinson’s dyskinesia and dystonia
which constantly shake my delicate painful bones. In these circumstances, I rely
on morphine tablets, relieving the pain so it becomes bearable.
Constipation
is a very common problem when suffering from Parkinson’s disease and I was told
when Duodopa is administered by a pump, it is important not to be constipated otherwise
the medication won’t work properly. What I did not realise was that having diarrhea
is just as bad, for the Duodopa is literally flushed straight out of the
system.
This past
week has been yet another learning curve, discovering this information the hard
way, it was as if the Duodopa had just stopped working and I was thrown into a
permanent “off” state. I have been on the Duodopa pump for six months now, but
clearly there are things I still don’t know.
I wish
you all a relaxing good weekend, but most of all, good health.
It's a steep learning curve with this condition. I'd heard
ReplyDeletethere was no pain with Parkinson's. I can relate to the
dystonia/joint pain which feels like my bones are pulling
apart. Thank you for your honesty.
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ReplyDelete