About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, April 12, 2013

Hand on heart

With hand on heart, I swear to tell the truth, the whole truth, and nothing but the truth! This is what my blog is all about; the bare, naked uncensored daily trials and tribulations of a woman, a wife and mother, a person just like you and millions of others around the world who suffer from  Parkinson's disease. Only a small number of patients are plagued with both Parkinson's and Gaucher disease. Someone asked me the other day, "when did you start writing?" and my answer was, "as soon as I could read and write". I wrote my first short story when I was five years old and the school teacher told me I had a talent for writing. What she didn't understand was my need to pour forth my thoughts and feelings onto paper, which today is known to be highly therapeutic. I was just doing what came naturally to me. No one expected anything from me, nor did they encourage my writing abilities, for all were convinced that a child in such poor health did not have many years to live. Let me take you by the hand and lead you back to the year 1968 when I was first diagnosed. Born with a chronic rare disease, there were no specialists or support groups back then, and little was known about this rare genetic disorder. The prognosis for a five year old child in those days looked very dim indeed, and the doctors forecast I wouldn't live much past puberty. How wrong were they?!!! Now nearing fifty years old, I think I can safely say, those predictions were very wrong.

Take a look at my article about going out and socialising which appears in The Huffington Post.

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