About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Wednesday, April 17, 2013

My evil twin

Feeling a little worse for wear, as if someone has removed my batteries and I'm running on an empty tank of fuel, I have been trying to take things easy the past few days. This is easier said than done, as its really not in my nature to sit and do nothing or just laze around. I have a huge fighting spirit and desire to experience and enjoy all I can, which is stuck inside this body of mine that doesn't work properly! It's like I have an evil twin inside me who's ready to take on the world, wants to dance the night away and paint the town red, whilst the other part of me knows the reality of my situation and is quite content to stay at home with my darling husband and daughter. 

I've often heard people pose the question: "Is it better to be of sound mind and suffer from a physical illness, or lose one's marbles yet physically be perfectly healthy?" To be honest, I think both scenarios stink! I took care of my mother for the last few years of her life and watched her mental health decline as dementia stole her away little by little, till there was nothing left of her apart from an empty shell barely resembling the woman I once knew. Here I am the total opposite, with sound mind, yet my body is rebelling and battling each day two major diseases. I have everything to live for, and this pushes me on, keeps me going when the going gets tough. Apart from which, the fact that no insurance company in the world is willing to risk giving me a life insurance policy (what a cheery encouraging thought) I am in the strange position of being worth more alive than dead! How interesting is that? the insurance companies presume I'm a bad risk and think they know something the doctors do not. I will not be defeated by pessimistic insurance businesses; if anything this strengthens my verve for I aim to prove them wrong. My husband often tells me I'm not normal, and the doctors have rarely seen a case such as mine, so with great determination, I'm going to grow old, have grey hair, lots of laugh lines, and enjoy my life as much as I can.

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