I'm an old hand at pain, we've unfortunately been life long companions, and
being in constant chronic pain is very debilitating. Not only is it wearing, it
makes one short of temper, focusing on a task becomes difficult and in addition
pain disturbs one's sleep. I am often rudely awoken by pain, and trying to find
a comfortable position to get back to sleep, is like trying to get a ticket to
the Super Bowl the night before the game - it's just not possible! Changing
positions in bed when you've got Parkinson's and I have the added bonus (forgive
my British sarcasm) of painful hips due to Gaucher disease, turning over is extremely difficult, and I am quite sure I constantly disturb my long suffering
husband who puts up with my nightly antics. Pain killers work to a certain degree,
but don't eliminate the pain entirely. What I find particularly irritating is
when people offer advice, well meaning and with good intent, I do realise they
are only trying to help. However, I do wish they would refrain, in particular when convinced if I were to take
some sort of herbal remedy, all my troubles would be over. I wish it were as
simple as this! My health situation is much more complicated than they could
possibly realise. I don't mind receiving sound advice from someone having
personal experience with both diseases or a trained doctor who specialises in
these fields, but when people have no medical training, and know nothing about
Gaucher or Parkinson's disease, it is not helpful nor supportive.
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