About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, May 8, 2012

Internal tremors

People associate Parkinson’s mostly with shaking and tremors which are clearly noticeable, but there are also internal tremors which are not visible to anyone else but are highly unpleasant. These tremors can occasionally literally drive me crazy, and I despair when people say to me “you look so well, I can’t see you shaking” they have no idea what is really going on at all. The tremors are exacerbated by any stress or tension, and seem to be inside my arms, legs and also in my chest. Many symptoms associated with Parkinson’s are not visible, so it is incredibly hard to judge how much someone is really suffering. This is also why it is so important to tell your doctor everything you are experiencing, for again it is not plain to the naked eye what is really going on. The medications I am on seem to be taking care of the external tremors pretty well, but the internal tremors are a daily torture and reign supreme! 

No comments:

Post a Comment