About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Thursday, May 31, 2012

Travel with me

If you've been following my blog you will have read that I wrote an Abstract entitled “Writing as Therapy” that was accepted by The First International Congress on "Narrative Medicine and Rare Diseases", which will be attended by doctors, people working in the medical field and patients suffering from rare diseases along with their families. I was asked to give an oral presentation, and today my husband and I are off to Italy. I will be blogging each day from Rome, so in a sense I will be taking you all with me, on this opportunity of a life time, where I’ll be representing Gaucher disease. I seem to have two hats to wear: Gaucher disease a rare chronic genetic disease and Parkinson's a common degenerative disease. So read my blog tomorrow morning and you’ll be with me in spirit in a wonderful country where the people are warm and hospitable; home of the Opera, the land of the original delicious Parmesan, pizza and pasta, and the many beautiful historical sites that maybe we’ll get a glimpse of during our short stay. Today will be a long tiring day, and we've booked assistance at the airport, as we’ll be taking my wheelchair with. So wish us Bon Voyage and I’ll catch up with you tomorrow, once we arrive in Italy. Ciao!

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