About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Wednesday, October 10, 2012

Talk in London

Tonight I will be giving a talk at the Parkinson’s Support Group in Finchley - London, and members from the British Gaucher Association who are interested, have been invited to join in for the evening. I intend resting all day, so that I will have enough energy for tonight’s speaking engagement. I look forward to seeing the organisers again, a charming vibrant couple who started this particular Group some years ago, and have been doing an amazing job, and to also meeting fellow sufferers. Who knows, maybe I’ll even come across another patient like myself who has both Gaucher and Parkinson’s. It takes a great deal of energy both physically and emotionally to speak in front of an audience when chronically ill, but I will continue public speaking for as long as I can. Hearing a patient talk to a group, from personal experience with Gaucher and Parkinson’s disease, is totally different from listening to a doctor’s speech; a person from a fundraising organisation, or simply reading about this topic. To see a patient, and hear first-hand what it is like to live with Parkinson’s gives a completely different perspective, one which fellow sufferer’s and caregivers can relate to, and for those who are unfamiliar with the disease, valuable information they might otherwise not have heard. The last time I gave a talk, I was asked if I would like to sit down, but I remained standing, despite the pain in my hips, for I have found delivering my message, holding the attention of the audience and making eye to eye contact, is much easier to achieve when standing. I see public speaking as an important way of raising awareness of both diseases. If you are coming along tonight – I look forward to seeing you, I know it will be an interesting evening.  


  1. Bravo, Elaine. I wish I could be there to hear you. I know that you will hold the audience spellbound.

    Jill Sadowsky

  2. Ditto! I only wish you had no experience with your subject matter, though through your suffering you are finding and experiencing so many more positive aspects of yourself that you never knew existed. I'm always thinking of and channeling you! K