I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Wednesday, January 23, 2013
Memory and repetition
Not all Parkinson's patients will experience cognitive difficulties, but as the disease progresses, a fairly large percentage have problems with memory and general mental ability. I was diagnosed with Parkinson's almost six years ago, and my memory is affected to some degree. I know that I often repeat myself, having forgotten I've already asked a question. This understandably becomes very tiresome and frustrating to say the least for my husband and daughter. Sometimes I must really try their patience, and who can blame them for getting annoyed? I would probably be equally irritated if I were in their shoes. However, understanding and tolerance should be shown, for it's very hurtful and demeaning to be told flatly "you've asked that 3 times already!" Apart from making me feel bad, I think twice about speaking now, as I'm afraid of repeating myself. Patients can often retreat within themselves, feeling embarrassed, and end up not talking at all. This is a bad scenario, for having been a chatter box my entire life, I have become much less talkative. Although hearing someone repeat themselves again and again must be enough to drive anyone up the wall; just stop and think a moment of how the person who has Parkinson's must be feeling. I'm always nervous of forgetting someone's name, not knowing if I'm repeating myself; makes me very hesitant and self conscious. To be totally honest; not remembering if I've said something or asked a question already and forgotten the answer, makes me feel like an idiot. I can assure you, I don't repeat myself for the fun of it, or get some deranged amusement from driving everyone crazy. Please show empathy and as much patience as you can muster when in the company of someone with Parkinson's.
Posted by Parkinson's, shaken, not stirred at 7:00 AM