When I look back over the last few years, and think of all that's happened, it is hardly surprising that my batteries are on an all time low, and I'm clutching onto what is left of me, as two chronic diseases run their course. What I've managed to achieve in being an advocate for both Gaucher disease and Parkinson's is more than I could ever have imagined possible. A healthy person would have had trouble keeping up with the pace I've been running at, but I was driven with an unstoppable passion and commitment to offer support to others in similar circumstances and to create further awareness. I have made some wonderful friends who are fellow sufferers and understand only too well my plight, but I don't know if I've succeeded in the latter, for as the old saying goes "you can lead a horse to water, but you cannot force it to drink". It was pointed out to me by a dear friend's father, and I quote:
"It is easy to see why most people know very little about Parkinson's. Most of us only seek information on what is important to us and our families. Problems caused by overload of information is one of societies current problem areas. Information without full understanding can be a dangerous thing (especially in children) When I go to my doctors surgery there are about 60 leaflets on the walls, including some information on Parkinson's. It is impossible to take all of the information in. Humans we are by necessity selective, it is one of the things that separates us from the rest."