I have talked many times of narrative medicine, how doctors and patients should be working together, which ultimately is beneficial to both parties. I am in my third year of participating in a programme where chronic patients talk to young student doctors in their first year of medial school to familiarize themselves with talking and understanding the issues and complexities of daily life as a chronic patient. A new set of students came to our house last week, and when I mentioned narrative medicine I was met with blank looks, so explained to the lovely young but rather green students what narrative medicine is. If you too, are unclear of this term and don't understand the concept, a fellow Parkie from down under sent me this wonderful You Tube clip which so clearly illustrates this very idea of participatory medicine. They say "a picture's worth a thousand words", so do watch this explicit and very clever piece. Please take a few minutes to watch this entertaining explanation which gets across the message so very well. TEDxTalks - Participatory Medicine - God to Guide
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.