About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, November 27, 2012

Becoming a burden

My mother's biggest fear was becoming a burden to her family in her old age. When I was diagnosed with Parkinson's five years ago, I began to understand her almost obsessive fear, as I too now worry about the future and becoming a burden to my darling husband.  A book entitled "…and death came third!" written by Andy Lopata, states that in 1984 a New York Times survey was held on social anxiety. Odd as it may sound, the number one fear people had was walking into a room full of strangers, followed by speaking in public. What is amazing, is that "death" came in third place! Hard to believe, but you can't argue with statistics. I guess my priorities have changed very much over the years. Walking into a room full of strangers doesn't phase me, and I find public speaking is most definitely not a problem. Even the survey's third most common fear; death, has never worried me at all. I think my number one fear would have to be the same as my mother's, for being a burden on one's family is infinitely more distressing than anything else I can think of. I hope a cure is on its way and that I can enjoy a long life with my husband and grow old together. I want to be one of those couples you see with silver grey hair, wrinkles and lots of laugh lines, still in love and holding hands as they sit on a park bench. It's not much to ask for, and it may sound a small dream to you, but it's the dream closest to my heart.

1 comment:

  1. My biggest fear also is of losing my independence. My husband and I have been together 25 years; are gray; have a few wrinkles; and do not do as much as we used to. I pray that you and your husband will MANY years together...it is not a small dream to me.
    My prayers are with you.