About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Wednesday, November 7, 2012

Disease orchestrated

Having two chronic diseases makes my life quite difficult (and that’s a British understatement if ever there was one!) Trying to keep both diseases under control, receiving the optimum medication and improving my quality of life is no mean feat. Our family doctor is the integral glue that like a conductor holds an orchestra together; she is the central pivot of doctors who take care of me specializing in their different fields. Like a driving force, with fresh eyes and new ideas, she has made quite a difference to the ensemble who look after me. One section of my personal orchestra specializes in Gaucher whilst the other sees to my Parkinson’s needs. But one needs a skilled ‘conductor’ (family doctor) with soul, to hold it all together resulting in the best harmony. I think I can honestly say, that I am feeling the best I have for quite a long time, and this is thanks to all the doctors and nurses working together in unison. It has taken quite some time with trial and error to get my Parkinson’s medications just right, and now with the huge added bonus of being able to actually sleep at night, so no more mid night writing sessions at the kitchen table till the wee hours of the morning, I blissfully sleep a whole night. What a pleasure! I cannot tell you for I don’t remember the last time I slept an entire night with no pain. It might literally be years! To sleep unhindered by pain, leaves me feeling refreshed and rejuvenated in the morning and much more able to cope with getting through the day. Not to mention that my husband is now not disturbed by my lack of sleep and the unpleasant feeling of seeing me in pain and unable to do anything to help. So he too has benefited and at long last can sleep undisturbed. I think if I had a theme tune it would have to be a song by The Corrs, entitled “At Your Side”.

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