About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, October 21, 2013

Eye problems related to Parkinson's

Suffering any chronic illness, especially a degenerative disease such as Parkinson's can result in feeling as if one's world is crumbling and falling apart. There are so many symptoms and facets of Parkinson's that cause strange complications, just when you think you know everything, something new crops up. I have noticed my eyesight has become extremely poor over the last few months, and after having all the tests you can possibly imagine, the optometrist could find nothing wrong. He told me to check with my neurologist, suspecting it was more than likely to do with Parkinson's. At my recent check up, I told my neurologist about the problems I was having, blurred vision, stinging eyes that barely blink, often dry and sore, making it difficult to read.
I discovered that due to Parkinson's patients blink far less than a healthy person, the protective tear film which is in fact the first layer that light hits when entering the eye, can often dry up. If this layer is defective, the light is scattered resulting in blurred vision. Knowing how expensive prescription glasses can be, I asked if it would be helpful to get new glasses, or if I would be wasting my money. It looks like I won't be getting new glasses, so this is yet one more symptom I shall have to put up with.

My home care nurse is about to arrive, to administer the enzyme replacement therapy for Gaucher disease, so I had better stop writing and get ready for her. The infusion takes about an hour and a half, and it's only once every two weeks which doesn't interfere much with one's life, especially since the introduction of "home treatment" saving many hours spent in hospital.
Take a look at this very interesting link and read for yourself about eye problems experienced by Parkinson's patients.

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