About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, October 8, 2013

Who's rocking the boat?

In answer to someone's comment the other day about wearing green shoe laces in support of Gaucher Awareness Month, you can wear them any way you wish; just because laces were meant for shoes doesn't mean you can't get inventive. Here is the Steps Ahead of Gaucher link again, if you'd like to take a look at the photo gallery to see what original ideas others have come up with.
Do you know someone, who when you ask "How are you?" they reply "Oh I can't complain…" and then promptly go on to list a long assortment of woes and troubles including intimate medical issues which is way more information than you want to hear, making you wish you'd never asked in the first place. But we all do it, for it's polite to ask "How are you?" and a sentence that rolls off the tongue before you can stop it.
I wondered the other day, if I was guilty of the same offence. When someone asks me "How are you?", I usually say "Not too bad", but then go on to tell them about my latest project which probably bores the pants off my relatives and friends who have heard pretty much everything there is to hear about Gaucher and Parkinson's. No disrespect meant, but I think they would be quite relieved if a cure were found and they didn't have to hear about my campaign any more. Believe me, I could think of nothing better than being cured and never to mention Parkinson's or Gaucher again.
I have a stubborn trait in my character, and absolutely refuse to sit quietly and surrender to chronic illness, that given half the chance would take over and engulf me like a tidal wave of ill health. Instead, I am resolute in my campaign to reach fellow sufferers and make the general public aware. Today I'm off to talk to some doctors that have travelled from abroad to attend a conference, so yet another chance to spread the word. Although I may be one small voice, my determination wont waver. I won't sit still, nor will I be quiet, I will rock this boat for as long as I am able.

1 comment:

  1. Good for you, my friend! Keep up the effort to train us in this illness venture...