To mark writing my daily blog for a second year, the
entire entries have been collated and made into a book which you may download
FREE from Smashwords It is not meant as a fine piece of literary work, but
rather an honest account in journal fashion touching on the very many aspects
of living with chronic disease. It doesn't matter if you have Parkinson's or
Gaucher, or suffer from an entirely different illness, for ultimately we all
ride life's roller-coaster of ups and
downs, of which we have little control over. I write frankly from personal
experience, with a sense of humour, about the every day effects chronic disease
has upon us and our families. Education and knowledge are paramount for the
patient, caregiver and the medical community.
Some medical conferences are explicitly for those in the medical profession, and patients are not invited. I can whole heartedly understand the purpose of these gatherings, sharing information that triggers discussion, bringing great minds together can be enlightening, striding to make advances for the patient's well-being. However I believe it is highly beneficial for doctors and nurses alike, to invite a patient or two along, purely to give a perspective from a very different view, that may shed some light on certain areas, assisting those in the medical field to have a better understanding.
A doctor or nurse might have been working for many
years and have a wealth of experience with patients suffering a certain disease,
and know the symptoms, medications and treatments inside out. But do they
understand and realise the ramifications chronic illness has upon the patient
and their family from an emotional, and psychological point of view? Many
patients are not forthcoming with personal information, which leaves the doctor
in the dark. It is therefore my aim that this journal "I'm Still Blogging" be of help to patients, caregivers and those working in the
medical field.
Some medical conferences are explicitly for those in the medical profession, and patients are not invited. I can whole heartedly understand the purpose of these gatherings, sharing information that triggers discussion, bringing great minds together can be enlightening, striding to make advances for the patient's well-being. However I believe it is highly beneficial for doctors and nurses alike, to invite a patient or two along, purely to give a perspective from a very different view, that may shed some light on certain areas, assisting those in the medical field to have a better understanding.
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