About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, October 15, 2013

Free Book Now Available

To mark writing my daily blog for a second year, the entire entries have been collated and made into a book which you may download FREE from Smashwords  It is not meant as a fine piece of literary work, but rather an honest account in journal fashion touching on the very many aspects of living with chronic disease. It doesn't matter if you have Parkinson's or Gaucher, or suffer from an entirely different illness, for ultimately we all ride life's roller-coaster of ups and downs, of which we have little control over. I write frankly from personal experience, with a sense of humour, about the every day effects chronic disease has upon us and our families. Education and knowledge are paramount for the patient, caregiver and the medical community.

Some medical conferences are explicitly for those in the medical profession, and patients are not invited. I can whole heartedly understand the purpose of these gatherings, sharing information that triggers discussion, bringing great minds together can be enlightening, striding to make advances for the patient's well-being. However I believe it is highly beneficial for doctors and nurses alike, to invite a patient or two along, purely to give a perspective from a very different view, that may shed some light on certain areas, assisting those in the medical field to have a better understanding.
A doctor or nurse might have been working for many years and have a wealth of experience with patients suffering a certain disease, and know the symptoms, medications and treatments inside out. But do they understand and realise the ramifications chronic illness has upon the patient and their family from an emotional, and psychological point of view? Many patients are not forthcoming with personal information, which leaves the doctor in the dark. It is therefore my aim that this journal "I'm Still Blogging" be of help to patients, caregivers and those working in the medical field.   

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