About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, October 7, 2013

Support

We all need support in one form or another, particularly when faced with on-going difficult issues. I posted on 1st October about this month being "Gaucher Awareness Month, and was amazed and warmed by the response. One friend, who fortunately does not suffer from Parkinson's or Gaucher, but has had some harrowing involvement with ill health in her family and life experiences one wouldn’t wish upon one's worst enemy, she fully understands the importance of empathy and support. Upon reading my blog, she immediately set forth on a mission to find a pair of bright green shoe laces (if you didn't read my blog on 1st October, maybe look back and read, for understandably you may be a little confused at this point about the significance of green shoe laces). I was so touched and impressed by her enthusiasm and response and wanted to say thank you for the effort and support, and thank you also to everyone who is wearing green shoe laces and participating in this awareness campaign. What started as an awareness promotion, might very well become the latest fashion statement!
I am just one person, and sometimes wonder if the hours I spend writing and campaigning bear any fruit. Then out of the blue, I receive e-mails from complete strangers who identify with what I am writing about, which confirms I am reaching people and gives me the strength and incentive to continue. You may not be able to change the world, but you'd be surprised at what one person can achieve when great determination drives you ever forward. Pulling resources together, in unity with one loud resonating strong voice - getting a message out to the general public, no matter what the cause, is made that much easier if we all join forces.
So let's shake things up - make a stand, voice your opinions, do something of significance and worth. Like a chain reaction, you have the power within you to inspire and really make a difference. 

1 comment:

  1. I am wheelchair bound and do not wear shoes, so I could wear green show laces around my feet on top of my socks. although this doesnt show up all that well, I thought of makeing a badge on the computer with "Gouchers Month" writen on it might stick out a little more than shoe laces in green. I could hang the green shoe laces from the badge, do you think this would do.??

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