About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, November 22, 2013

Winter Has Arrived

Our thick duvet has been brought down off the top shelf and for it's now cold at nights. Winter has well and truly arrived, and my bones like some kind of personal weather vane indicate to me the barometric pressure changes, if it's going to rain and be cold. Like anyone with bone problems, I suffer more with Gaucher disease during the winter months as the cold naturally affects the bones and joints in particular. Some days the pain is bearable and I am able to put up with it, but other days it's a different story. I'm sure anyone with bone problems has similar "winter issues" and keeping warm is one way of helping ease the pain. This is the time of year when the drop dead gorgeous thermal underwear comes out of the bottom drawer. My husband calls these my "passion killers", and I have to admit he's right, for I resemble a cowboy in his undergarments from a bad B rate movie!

Having friends over one night, we made a bonfire outside and the flames were so hot, we had to shield our faces, but turning with our backs towards the fire, the heat felt very good on our backs. We're planning to make another bonfire next week, but this time my friend will bring her guitar, she has the sweetest singing voice and who knows, maybe we'll roast some marshmallows too. You simply can't have a bonfire without marshmallows. The two go together like strawberries and cream, or fish and chips. 

A question I have been asked many a time by doctors, is "On a scale of one to ten, how bad is the pain?" I'm sure I am not alone from having been asked this question which is extremely difficult to answer for everyone has a different perception of pain. I wrote about this particular topic in this week's article on  The Huffington Post.


  1. About the bonfire and marshmallows, i really want to try it out, i mean i've never had marshmallows before. What does it taste like?

  2. Very, very sweet with a chewy, squishy texture before heating over the fire, then it becomes runny and needs to be eaten quickly.