I walk very poorly, shuffle my feet and
with my back often hunched over as if I am rehearsing a scene from The
Hunchback of Nostradamus, this must be far from an appealing look for a 49 year
old woman. Appearing confused and forgetful recently, my medications have been
adjusted once again, which for any Parkinson’s patient is a constant battle of
trying to get the optimum dosage right. My life has changed in so many drastic
ways since diagnosed with Parkinson’s; it’s a daily battle trying to cling on
to whatever I can of my former self. With numerous changes, I often wonder if
my family are able to recognise that I'm still ‘me’ inside this dilapidated
malfunctioning body of mine; the wife and mother who was once so energetic,
capable and organised. Today sadly many young people are diagnosed with
Parkinson’s and the general public are becoming slowly aware that this is not a
disease strictly for the older generation. Everywhere I go and everyone I meet is
an opportunity to educate and spread the word about Parkinson’s. You too can do
your part by bringing greater awareness through openly telling your story to
those you meet as an ambassador for Parkinson’s disease.
About me
PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Thursday, July 19, 2012
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