It’s exhausting being ill

It’s hard enough being chronically ill, not able to work, unintentionally creates additional  emotional and financial strains on the family. Every activity centres around the disabled person, having to adapt and make special arrangements. The smallest of outings can end up being a military style organised operation taking into account all the logistics. Just keeping up with medical care, doctors’ appointments, hospital visits, ensuring not to run out of medications – the on-going list is endless. On top of all this are other problems such as suitable housing, disabled parking permits, a car large enough for a wheelchair, holiday insurance - problematic if hospitalised within the last six months (laws vary depending on where you live). But suffice it to say, there are many extra things to take into account and attend to, when caring for someone who is chronically ill. Finding out what one’s rights are is an important yet exhausting necessity, asking for no more but no less than you are entitled to and receiving appropriate help. Don’t be shy in asking for help; if you don’t speak up, no one else will.