About me
PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Tuesday, January 15, 2013
Quality of life
Since moving, the quality of
my life, not to mention that of my family, has improved vastly. The nurse
arrived at our new home, to administer my Gaucher medication, and it is such a
pleasure sitting in the lounge, looking out, the sunshine streaming in through
the windows filling the entire room with light and warmth. As I sit here
writing this morning, attached to the i.v. having my home treatment, I realise the
enormous improvement a well thought out disabled friendly house can have on the
quality of life for someone like myself. Should I need to visit the bathroom
during the hour and a half infusion, which inevitably happens - it's Murphy's Law; this
house has wide corridors and doorways, enabling me to wheel my i.v. stand and enter
the bathroom without a problem. Living in a safe and comfortable environment
really makes a huge difference. I knew life would be easier for me, but until
actually moving in, I had no idea to what degree. The design and thought spent
on this house, has affected me in a huge positive way. Some of the features may
sound small to those who are healthy, but some of the little things, such as
the design of the kitchen, is a huge transformation for me. For example, there
is a kitchen island, giving me something solid to hold onto should my balance
be off. The kitchen tap has a robust lever which is easy to grab hold of for
anyone with Parkinson's. The man in the shop tried selling us a more stylish
slim tap with a spindly lever, but once I explained the lack of dexterity in my
fingers, he understood, and brought out last year's designs from the back of
the storeroom, which were far more suitable to my needs. So I have last year's
tap design - it doesn't bother me! Instead of cupboards, I have pull out
drawers containing all the necessary things I would use on a daily basis, which
are far easier than regular cupboards with fixed shelves. I am extremely happy
with the way the house has turned out. It is undoubtedly well worth
investigating, and finding out as much information as possible, from
professionals in this field and also gleaning advice from disabled people who
may have valuable personal experience.
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