About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, January 29, 2013

Take medications on time

It's all very well having an alarm on my mobile phone, to remind me to take my Parkinson's medications, but often has been the case, I hear the alarm, turn it off, then promptly get distracted by something, and end up forgetting to take my pill. Missing PD medications or taking them late, causes immediate consequences, and it doesn't take very long before I start to feel the effects and realise I've forgotten to take a pill. I'm sure any fellow sufferer can empathize. Unlike Gaucher treatment, which is administered by infusion once every two weeks; it works in an entirely different way, and having the enzyme replacement therapy a day or two early or late does not affect the patient. But Parkinson's medications work in a very different way, and you can't afford to forget taking pills or taking too many. Timing with PD medications is everything, ensuring enough space between doses, and not eating immediately after taking Dopamine, especially protein. I carry spare Dopamine pills with me at all times, just in case I am delayed in getting home. Whenever we travel, I keep my medications in my hand luggage, just in case my suitcase decides to vacation somewhere else. I can always buy a new toothbrush, and a few new clothes; who wouldn't mind a little shopping therapy, but trying to get the correct Parkinson's medications in a foreign country would be pretty difficult. I never leave renewing prescriptions till the last minute, as running out of pills at home, although undoubtedly easier than abroad, causes unnecessary last minute panic, that we could all do without. So much of my life and this disease I have no control over, but I do my best to manage the areas I can control.

No comments:

Post a Comment