About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Wednesday, June 6, 2012

Back Home

It is good to be back home and sleeping in our own bed. As the old saying goes “there’s no place like home” – although I have to say “there’s also no place like Rome!” Italy is a beautiful country and well worth a visit. It will take me a few days to recover from this trip. Travelling abroad isn't easy for me; although we took my own wheelchair making things as comfortable as possible, and we booked in advance through the Airline for “Special Assistance”, the journey was still very gruelling. Most international airports are so large, requiring a lot of walking, not to mention standing and waiting in line, I couldn't travel without this necessary help.  My body feels exhausted, and I am depleted to the extent that it’s hard to function. It always takes me several days to get over a journey like this, and I will try to take it easy for the rest of the week. Our darling daughter came to pick us up from the airport and it was very good to see her smiling face. Walking into the house, we were greeted by our devoted dog whose tail wagged constantly like the metronome on a piano, and "welcome home" signs, along with beautiful pink flowers in vases everywhere. It was a most memorable trip; a great honour to be invited to speak at the Congress and I thank all those involved who must have worked hard ensuring its success. I met some amazing people, with great minds and innovative ideas, all striving towards a better health system marrying the current health system along with narrative medicine. I was fortunate to get a little taste of an incredible country that I had long dreamt of visiting, and I am so very glad we went enabling me to be represent Gaucher disease from a patient's perspective. 

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