Reading the
news, it is very encouraging to see that every so often a story appears,
reporting on new research or clinical trials related to Parkinson’s and various
similar diseases. With so much happening all over the world, it gives me hope
that maybe we are not too far off from finding a cure, or at least a treatment
that stops the disease from getting any worse. There is definitely greater
awareness today about Parkinson’s and many people doing wonderful
voluntary work, fund raising, running events for support groups and doing all
they can to ensure the momentum continues, keeping this disease in the
forefront of the media, encouraging the doctors, scientists and pharmaceutical
companies to strive forwards in finding relief for the millions of sufferers
around the globe. I am in the unusual position of suffering two diseases,
Gaucher and Parkinson’s which puts me in a very small group, and from what I
understand there may be only a few hundred recorded cases like mine in the
entire world. Put together a rare disease and a fairly common disease, and a
special category is created. Believe me; I would much prefer not to be quite so
‘special’ for apart from my late brother, I have met only one other person, who
like myself has these two diseases. You may well have gathered, a support group
for Gaucher patients with Parkinson’s does not exist!
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