About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, June 8, 2012

Wearing two hats

I am in the strange situation of wearing two hats – one for Gaucher and one for Parkinson’s disease. I have often been asked which disease do I suffer from the most. This is difficult to answer. I would have to say on a daily basis, Parkinson’s is much more debilitating and as it is a degenerative disease, medications have to be constantly changed or doses altered. However, when Gaucher decides to play havoc with my bones, the pain can be extreme, occasionally requiring hospitalisation, receiving morphine to dull the agonising pain. Thankfully since I have been on enzyme replacement therapy (VIPRIV) these events have occurred less. When suffering from a chronic disease or two! a sense of humour is so important – without this I don’t know how I would get through the tough times. Laughter they say is the best medicine, and sometimes life can get so difficult and become absurd, that you've got to laugh! If you would like to take a look at one of my poems entitled “ You've got to laugh”, it has been put up on LadybugflightsBooks Website. In my recent oral presentation which I gave in Rome, I said "There's a silver lining in everything, you've just got to know how to see it." I wish you all a good weekend, and hope you can see your silver lining!

1 comment:

  1. After reading what you go through, I wake up every morning and see only the good things in my life.