About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, June 4, 2012

Congress for Narrative Medicine & Rare Diseases

Last night we had an early supper, after a restful day, ensuring that I should be fresh for my presentation . Today is the day, and we got up bright and early, and had a robust breakfast. We’ll be taking a taxi to the Congress, and shall arrive there a little early, so that we can meet the organisers, and see the room where the lectures will be taking place. I don't feel nervous, but am very excited to be here and taking part. Registration is at 09:00. Participants will be welcomed at 09:40, and at 09:55 there will be an Introduction. Following this at 10:10 the renowned Prof. Brian Hurwitz will speak (who is from England), after which it is yours truly. I will be speaking at 10:55 for 15 minutes with a further 5 minutes for questions. There are a number of interesting speakers throughout the day, a break naturally for lunch, several poster presentations and the Congress will come to an end at 17:00. I will write my blog later night and let you all know how it went. Thank you everyone for all your support and messages of good luck. I almost feel you are with me in spirit. Arrivederci for now!


  1. Good luck Elaine, thinking of you all the time.

  2. Good Luck E, enjoy and tell is how it is

  3. I'm sure they all got as much out of hearing you speak as you received by this whole experience!

  4. Great to read of your experiences and thoughts in Rome
    Looking forward to read about the Big Day
    Love Hugs and Kisses from us to you both