Knowing when to rest and listen
to your body is terribly important. With all the excitement recently of
speaking at a Congress in Rome, I have been running on adrenaline, and finally
yesterday it was as if someone had removed my batteries. I knew this would
happen, and will have to be patient now, rest as much as I can, take things
easy and regain my strength. I met a lady in Rome, who like me, possesses the ‘happy
gene’, and despite her being desperately ill, having many operations and
spending much time in hospital, no one would ever guess how very ill she is,
simply by looking at her. She asked me how I deal with this issue of not being
understood. I told her that I had exactly the same problem; having a cheerful
attitude and not making a fuss, totally confuses people, especially doctors. I shouldn't have to go around with a label stuck to my forehead informing
everyone I'm chronically ill despite the smile on my face, or have to moan and
wear a sad expression so that all would understand how ill I actually am. It is
far better emotionally / psychologically and healthier to be positive and cheerful,
not just for myself, but for my immediate family, friends and all those around
me. It wasn't until I wrote my book of poems, that those who know me realised and
understood what I go through on a daily basis. It’s a bit of a conundrum;
appearing happy gives the impression I am well, yet I refuse to go around with
a long face simply to ensure people realise my real situation.
About me
PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Tuesday, June 12, 2012
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