About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, June 12, 2012

The need for rest

Knowing when to rest and listen to your body is terribly important. With all the excitement recently of speaking at a Congress in Rome, I have been running on adrenaline, and finally yesterday it was as if someone had removed my batteries. I knew this would happen, and will have to be patient now, rest as much as I can, take things easy and regain my strength. I met a lady in Rome, who like me, possesses the ‘happy gene’, and despite her being desperately ill, having many operations and spending much time in hospital, no one would ever guess how very ill she is, simply by looking at her. She asked me how I deal with this issue of not being understood. I told her that I had exactly the same problem; having a cheerful attitude and not making a fuss, totally confuses people, especially doctors. I shouldn't have to go around with a label stuck to my forehead informing everyone I'm chronically ill despite the smile on my face, or have to moan and wear a sad expression so that all would understand how ill I actually am. It is far better emotionally / psychologically and healthier to be positive and cheerful, not just for myself, but for my immediate family, friends and all those around me. It wasn't until I wrote my book of poems, that those who know me realised and understood what I go through on a daily basis. It’s a bit of a conundrum; appearing happy gives the impression I am well, yet I refuse to go around with a long face simply to ensure people realise my real situation.

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