Caregiver burnout

Unlike some diseases, a Parkinson's patient can live a long life, therefore the prospect of the caregiver taking care of a loved one for many years to come may be overwhelming. It is therefore vital that the long term caregiver doesn't neglect his/her own health, avoiding regular medical appointments or tests. Having a hobby or physical activity is a great outlet for the caregiver. Family and friends can help by thinking of inviting the caregiver to events or social gatherings. Just because a person with Parkinson's may not be able to partake in a particular activity, don't forget about the needs of the caregiver who is able and may enjoy participating. Chronic illness can cause the relationship in a marriage to change considerably, and instead of being an equal partnership - the balance unquestionably shifts. The one who takes on the role of caregiver has increased responsibilities than the spouse who is ill, and is often left feeling guilty and inadequate; more like a "patient" than one half of a team/couple. Keeping family and friends living long distance in the picture is important too, and they can help in various ways despite being far away. Even a telephone call once a week to ask how the caregiver is holding up, sending a card, e-mail or parcel filled with the caregiver's favourite "goodies" can brighten his/her day, thereby letting them know they are thought about and appreciated. Lightening the load of the caregiver to avoid "burnout" just requires a little imagination and thought from family and friends. Small gestures can bring great comfort to a caregiver who may look like they are holding it together on the outside, but underneath that cool "got it under control" exterior, there could be a drained individual in distress. Pay attention and do what you can to help. Don't wait to be asked, or leave it until it's too late.

Take a look at my latest article that appears on The Huffington Post.