"Parkinson's Masking" is the term used when a person has an
expressionless face, hardly blinking, turning one's entire head to look instead of moving just the eyes. Not everyone with Parkinson's will encounter masking. Make sure
that your spouse/partner, family and friends are aware of this symptom. Usually
I can feel when my face starts to "freeze", but on occasion I need
someone to tell me. All small expressions, raising an eyebrow, a slight grin or
wink no longer show on my face, but if someone makes me laugh really hard, then
you'll see my smile and laugh. Most of the time my face is expressionless, and
this is very confusing and disconcerting to those who don't understand. There
are exercises one can do, by contorting one's face into exaggerated stretching
movements, which as you can well imagine make one look extremely funny, so
probably best done when alone, unless you want to entertain the family! I didn't realise
how much I rely on facial expression when conversing or simply listening to
someone. It's terribly embarrassing to listen to a sad or serious subject being
discussed and instead of having the appropriate expression, my face looks gormless
and blank, as if I'm not following or understanding the conversation. Should
you happen to be in the company of someone with Parkinson's and their face has
a masked expression, don't assume they are unintelligent or disinterested in
what you have to say. Behind the mask is the same fun, interesting intelligent
person you once you knew.
About me
PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Wednesday, February 20, 2013
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