This poem was written in a moment of despair during the night when my
body racked with pain; I was unable to sleep or find a comfortable position for
a moment's relief. This is what it feels like when Parkinson's is at its worst. Despite my devoted husband laying by my side fast asleep, I couldn't
have felt more alone in the world. Most patients suffering PD wont mention "down moments" like this, let alone write about them for all to read. I therefore felt it important to share this poem with you today, not
with the intention of making you sad or depressed, but merely to illustrate how this degenerative disease slowly but surely steals away one's life and what goes through
a sufferers mind in desperate moments.
I
once was a shining beacon,
For
all the ships at sea.
My
light was bright and ever shone,
A
full life awaited me.
But
now my light is fading,
It
flickers and splutters by day,
At
night can barely be seen,
As
it meekly fades away.
A
tiny ember where a flame once burst,
Sadly
now all remains to see,
One
day a gust of wind will blow,
Snuff out the light and set me free.
Written by Elaine Benton© 2013
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