About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Wednesday, May 15, 2013

Slow like a tortoise

Years ago I used to be a very fast typist, but as Parkinson's progresses, my speed is slowing down considerably. My right arm has become extremely painful for the last few days, making it even harder than usual to accomplish anything. Whether this is down to Parkinson's or Gaucher - who knows! However, it has rendered me to typing with one finger on my left hand, which is the side of my body most affected by Parkinson's. Doing things with just one hand is very difficult, and time consuming, but like the famous tale of the tortoise and the hare, I may be slow, but I'll get there in the end. 

It's not my life that is complicated, its just my health that is complex. Anyone suffering more than one disease will no doubt find that there are many symptoms that overlap, and often cloud the issue, making it hard to distinguish what exactly is manifesting itself. I feel like a car that is long over due for a good service and overhaul. I wish it were that easy. When my car had a puncture, it was fixed that same day, old worn tyres were replaced with new ones, when a light bulb goes, a new one is put in its place. At the back of the garage there was a sign that said "Body Workshop" - I smiled to myself, imagining for one moment some space age scenario where you could walk into a machine and at a flip of a switch all one's medical problems would be sorted. Now how cool would that be? But from all the banging and  noise emanating from the "Body Workshop" I was quickly brought back to reality and it was clear that only cars were behind those closed doors. I will bid you farewell for today, as I can't write any more - my one finger is getting tired of typing! 

1 comment:

  1. Elaine, I have just read your blog and through all that pain you still manage to keep your sense of humor and positive attitude toward life. Once again I find myself telling you how amazing your attitude is. It is one thing to keep it up for a while, but you keep on smiling. I do hope that your doctors manage to find a way to ease your pain.