About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, September 9, 2013

Watching one's weight

Not being obsessive, but keeping a watchful eye on one's weight is important. Many patients lose weight due to various reasons, one of which is inability to swallow, and choking on one's food regularly is understandably enough to discourage anyone from eating. Losing one's sense of smell does affect to some degree one's appetite, and I have personally found there are certain foods I used to like but now can take them or leave them. I have noticed a definite change in my choice of foods. Although I can't find any data confirming this, I feel sure the sudden change in tastes is connected to Parkinson's. Eating in public is a fairly big problem many fellow sufferer can relate to, as it can be embarrassing, dropping food or making a mess, and quite often I will refrain from eating at a function just to avoid any mishaps. Sometimes, when I am alone at home during the day, I'm simply not hungry, and could easily skip a meal going without eating. However, knowing it is important to eat a well balanced diet, I occasionally have to force myself to eat something, however little it may be.

Then you have the other extreme, where patients put on weight. This is completely understandable, since mobility is often a problem, and lack of exercise or movement, any calories consumed are not burnt off. You've heard the saying "what passes the lips, stays on the hips"!

I am finding it quite hard to keep my weight stable. I am constantly losing or gaining weight - our bathroom scales go up and down like a yoyo. Some weeks clothes fit snugly and others I appear to be swimming in fabric. It's hard to strike the happy medium.

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