Yesterday morning, the nurse from the company who make the medication I am receiving, arrived bright and early to administer my i.v.
treatment for Gaucher disease. It takes approximately one and a half hours for the medicine to complete dripping at a slow rate, during which time I usually can't do much, whilst attached to my i.v. stand. I have known the nurse for quite a number of
years and apart from her being a lovely woman, I admire her dedication and work ethics, not to mention the genuine concern
she has for the Gaucher patients in her care. What I didn't realise until
recently, was that she is responsible for Gaucher patients being able to
receive "home care". Not only does this relieve hospitals of costly hours spent administering the enzyme replacement therapy in outpatients wards, but it is a huge improvement which increases quality of life greatly for patients. Instead
of spending the best part of a day every two weeks in hospital hooked up to an infusion
receiving the enzyme that Gaucher patients are missing, possibly missing precious time at school or work; to be able to receive treatment in the comfort of one's own home at a convenient hour, is of huge benefit to all. So
should this modest wonderful nurse happen to be reading my blog this morning - I'm
sure the many patients who have gained significantly like myself, would like to
join me in saying a huge THANK YOU for not only thinking of "home
treatment" but making it a reality.
Tuesday, July 16, 2013
Home Treatment
Yesterday morning, the nurse from the company who make the medication I am receiving, arrived bright and early to administer my i.v.
treatment for Gaucher disease. It takes approximately one and a half hours for the medicine to complete dripping at a slow rate, during which time I usually can't do much, whilst attached to my i.v. stand. I have known the nurse for quite a number of
years and apart from her being a lovely woman, I admire her dedication and work ethics, not to mention the genuine concern
she has for the Gaucher patients in her care. What I didn't realise until
recently, was that she is responsible for Gaucher patients being able to
receive "home care". Not only does this relieve hospitals of costly hours spent administering the enzyme replacement therapy in outpatients wards, but it is a huge improvement which increases quality of life greatly for patients. Instead
of spending the best part of a day every two weeks in hospital hooked up to an infusion
receiving the enzyme that Gaucher patients are missing, possibly missing precious time at school or work; to be able to receive treatment in the comfort of one's own home at a convenient hour, is of huge benefit to all. So
should this modest wonderful nurse happen to be reading my blog this morning - I'm
sure the many patients who have gained significantly like myself, would like to
join me in saying a huge THANK YOU for not only thinking of "home
treatment" but making it a reality.
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