About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Thursday, July 11, 2013

What's normal?

Today is a new day - so I'll turn over a page from yesterday's sorrows and begin a new chapter. I unequivocally refuse to let anything or anyone bring my spirits down, my fighting life-force has kicked in this morning, and I'm back in full strength. So beware - don't mess with this Parkinson's patient!

Having ups and downs when suffering any chronic illness is perfectly normal. Living with Parkinson's, one's sense of normality keeps constantly changing. Every day is slightly different, there is no standard behaviour regarding this malicious disease, which like a mischievous child hyped up on sugar, one has no way of knowing what awaits a patient from day to day. When I come across someone unfamiliar with Parkinson's, they find it quite "normal" that one would shake and have tremors. Often I've been asked "Why don't you shake? Isn't it normal for people with Parkinson's to shake?" Well yes indeed for most patients it is, however there are some that don't shake but instead suffer from many of the other debilitating nasty symptoms that this disease has to offer. When I explain that my medications control the shaking most of the time, they then think, "Oh so you're OK then?" How far from the truth could that response be? How does one even begin to explain what is going on. I often want to throw my hands up in desperation, as I describe how dopamine normally helps control the shaking, but not always. There are no normal set of rules with this particular disease. The definition of "normal" according to the Oxford Dictionary is: "conforming to a standard; usual, typical or expected". Therefore the word "normal" is incongruous with Parkinson's. How can anyone judge what is "normal"? Does "normal" even exist, for we are all individuals, everyone is different, and wouldn't life be awfully boring if we were all the same? I think sometimes it’s a person's eccentricities and imperfections that make them the remarkable person they are. When someone or something is not "normal" - the fundamental "difference" is usually what makes life far more interesting. I'd opt for "different" any day over "normal". 

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