About me
PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Sunday, August 5, 2012
Accepting Diagnosis
Diagnosis affects people in different ways.
For the sufferer, diagnosis is very personal, and one can understandably be selfish
to some degree, consumed with thoughts of symptoms, possible medications and life
changing prognosis. The caregiver has a slightly different agenda of worries
and concerns, as the unexpected task of ‘caring’ with its additional
responsibilities, how the disease will affect daily life of the entire
family, can weigh very heavily, and in some cases bring events to a breaking
point. Honest and open dialogue between parties is vital, and if necessary a
third party such as a social worker or therapist should be brought into the
picture. Having a support system in place, such as family and friends, doctors,
support groups, and being educated about the disease lightens the load
considerably on both sufferer and carer. I think attitude is one of the most important
factors, keeping positive, actively making the
best out of such circumstances, eases the situation to some degree. Parkinson’s
or any chronic debilitating disease is something one would never imagine happening
to you or your family, and when suddenly slapped in the face with diagnosis, the
immense reality of it all comes thundering down. It can be hard to come to
terms with, bringing out emotions such as denial, anger, frustration, guilt and
knowing life will never be quite the same again. It’s not an easy process to go
through, but just know you are not alone.
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