Sitting here writing my blog, I was reminded of a something that Pankaj Gandhi said: “The prettiest smiles, hides the deepest secrets. The prettiest eyes have
cried the most tears, and the kindest hearts have felt the most pain.” A smile
is often the first thing one notices about a person, it can be the first sign
of greeting or initial impression. I have
felt for some time that my expression has started to freeze; mask-like on
occasion and smiling now comes less natural. I used to continually have a big
smile on my face, and although I still feel like I’m smiling, often no one else
can see. Someone commented on the fact that I appear to be smiling less, and
this is not due to feeling down or sad, simply that the muscles in my face are
not responding as they used to. Losing my smile is a big loss to me, and whilst
talking in a room full of strangers the other day, I felt acutely aware that my
expression was frozen. People who do not understand this symptom of Parkinson’s
might think that I am cold, unsympathetic or disinterested in what they are
saying, but what they don’t understand is that under this masked expression,
there is a huge beaming smile deep within me. I spotted a woman the other day
and immediately recognised the classic Parkinson’s shuffle, non-swinging arms,
resting tremor and frozen masked expression. As I neared her, we made eye
contact, simultaneously realising that we were both taunted by Parkinson’s. Being part of this special group, a member of a growing
fraternity where we have our own special ‘handshake’ (forgive my pun) and are
members for life. There is no membership fee, no initiation ritual or
secret ceremonies; just a diagnosis.
About me
PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Monday, August 27, 2012
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Elaine, you are an example to us all. I would like to see this blog on the front page of every newspaper, as you can be held up as an example of someone who sees the half- full glass, who never complains and who always has a smile on her face, even if it sometimes a half smile.
ReplyDeleteJill Sadowsky