About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, August 31, 2012


Today I want to talk about self-medicating, and must remind you that I am speaking as a patient; I am not a doctor. Although as chronic patients we often recognise instinctively when something is wrong; know much about the disease from which we are suffering, thanks to Internet easy access of information, and as I have said before, “you know your body better than anyone.” However, I can’t stress enough – DO NOT SELF-MEDICATE. No matter how well you think you know your health status, the medications you are on, and how you actually feel, this does not give you the wealth of experience and knowledge of a professional doctor. I can’t say it any plainer; it is HIGHLY DANGEROUS to stop taking or alter dosage of medications without first consulting your doctor. Parkinson’s medications need to be finely tuned, and admittedly much patience is needed on our part until the doctor has found the right combination of pills, the correct dose and various time intervals between drugs. Messing around and thinking that you know best or can do better by yourself, can lead to serious ramifications. I have the utmost faith and confidence in my doctors, and value their advice and opinions. If you are unsatisfied with your doctor, then see if you can change to a different doctor. I do not talk lightly on this matter, so please take heed. DO NOT SELF-MEDICATE!

1 comment:

  1. Thank you, Elaine, for addressing this extremely important topic. Sometimes we may feel that if a small amount of medicine makes us feel better, maybe a little bit more may not harm us, can even be better. Don't even entertain this idea! Medications aimed at repairing the brain's chemistry will almost always be detrimental to your health when taken without a doctor's watchful eye; it must be monitored! More problems arise if the patient has been under added stress from work, family and/or from trying to keep this diagnosis a secret. I have watched a family member go down this route and it is a cocktail for disaster. Please listen to Elaine's message.