About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, April 15, 2013

PD Pain

I'm an old hand at pain, we've unfortunately been life long companions, and being in constant chronic pain is very debilitating. Not only is it wearing, it makes one short of temper, focusing on a task becomes difficult and in addition pain disturbs one's sleep. I am often rudely awoken by pain, and trying to find a comfortable position to get back to sleep, is like trying to get a ticket to the Super Bowl the night before the game - it's just not possible! Changing positions in bed when you've got Parkinson's and I have the added bonus (forgive my British sarcasm) of painful hips due to Gaucher disease, turning over is extremely difficult, and I am quite sure I constantly disturb my long suffering husband who puts up with my nightly antics. Pain killers work to a certain degree, but don't eliminate the pain entirely. What I find particularly irritating is when people offer advice, well meaning and with good intent, I do realise they are only trying to help. However, I do wish they would refrain,  in particular when convinced if I were to take some sort of herbal remedy, all my troubles would be over. I wish it were as simple as this! My health situation is much more complicated than they could possibly realise. I don't mind receiving sound advice from someone having personal experience with both diseases or a trained doctor who specialises in these fields, but when people have no medical training, and know nothing about Gaucher or Parkinson's disease, it is not helpful nor supportive. 

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