With hand on
heart, I swear to tell the truth, the whole truth, and nothing but the truth!
This is what my blog is all about; the bare, naked uncensored daily trials and
tribulations of a woman, a wife and mother, a person just like you and millions
of others around the world who suffer from Parkinson's disease. Only a small number of
patients are plagued with both Parkinson's and Gaucher disease. Someone asked
me the other day, "when did you start writing?" and my answer was,
"as soon as I could read and write". I wrote my first short story
when I was five years old and the school teacher told me I had a talent for
writing. What she didn't understand was my need to pour forth my thoughts and
feelings onto paper, which today is known to be highly therapeutic. I was just
doing what came naturally to me. No one expected anything from me, nor did they
encourage my writing abilities, for all were convinced that a child in such
poor health did not have many years to live. Let me take you by the hand and
lead you back to the year 1968 when I was first diagnosed. Born with a chronic
rare disease, there were no specialists or support groups back then, and little
was known about this rare genetic disorder. The prognosis for a five year old
child in those days looked very dim indeed, and the doctors forecast I wouldn't
live much past puberty. How wrong were they?!!! Now nearing fifty years old, I think
I can safely say, those predictions were very wrong.
Take a look at my article about going out and socialising which appears in The Huffington Post.
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