About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Sunday, September 9, 2012

Pain Clinic

Being in constant pain is very tiring and wearing, making it difficult to be in the company of others. I understand only too well, there’s nothing that makes people more uncomfortable than being in the company of and seeing someone in pain. The Gaucher and Parkinson’s disease are having a grand uninvited “pain party” in my body and I have been advised to go to a special Pain Clinic where hopefully they will be able to prescribe me something suitable for long term pain management. Anyone with Parkinson’s can relate to the stiffness and rigidity that are classic painful manifestations of the disease, which unfortunately do not get easier as time goes by. Add to that bone pain from the Gaucher’s and you have a blended cocktail of agony. Exercise, if one is able to stick to some sort of regime is the best way of warding off this downhill spiral and keeping as mobile as possible. Having Gaucher, I am limited in the exercise I am able to safely do without damaging fragile bones and joints, so I find myself in a bit of a catch 22 situation. Gaucher and Parkinson’s are definitely not a good combination, and one antagonises the other. Professional pain management can improve quality of life so it’s well worth going to a Pain Clinic where they specialise in this field if you are suffering chronic pain on a constant basis.

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