About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, December 10, 2013

Being at the end of one's rope

Some days are easier than others. There is no forecast or warning if a day is going to be a good one or bad one. Parkinson's in its own inevitable way decides when and where it will drive you to distraction, sometimes leaving one at the end of one's rope. If I have plans or we've been invited somewhere and suddenly Parkinson's decides to step in like a whirling dervish disrupting my day, cancelling arrangements is often the only option. This is where it is crucial that family and friends understand  and realise the effects Parkinson's can have on one's social life.
We have often had to leave early and disrupt a pleasant social evening with friends due to Parkinson's, which is not a nice feeling, and I hope everyone appreciates my circumstances. For someone who knows nothing about Parkinson's, it would be hard to comprehend what is so difficult in sitting at a dining table surrounded by friends, interesting conversation and good food. Yet for the person suffering from Parkinson's, on a bad day, it can be very awkward, a grueling experience, and simply down right uncomfortable.

Nothing is simple or easy when it comes to Parkinson's and at times it's like being at the end of one's rope.  

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