About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, December 31, 2013

Farewell 2013

I was born with Gaucher disease, battling ill health from a young child, and for the last eight years I have been living with Parkinson's. Becoming an advocate for both diseases, has taken me on a tremendous journey, one which I would never have dreamt of. I have shared with you all my thoughts in an honest candid fashion, the ups and downs of living with chronic disease, along with imparting helpful information I've learnt along the way. There have been difficulties and bad days tempered with funny stories to relate, and I hope my sense of humour and positive attitude in the face of adversity have spoken to you, reached out as if we were sitting opposite one another having a companionable chat albeit via the Internet. I have had the great privilege of speaking on behalf of the Parkinson's and Gaucher community through my articles in The Huffington Post and at various public speaking engagements. A gift you have all given me is the pleasure of meeting many wonderful good people, fellow sufferers and caregivers, hearing inspiring stories that touch the heart and uplift one's spirit.
I would like to thank you, my readers, for all the support, comments, e-mails and messages you've sent me and I wish you all the very best. May you experience more good days than bad, enjoy happy moments with your loved ones, make special memories that you'll look back on fondly, and grab life with both hands. Don't waste time and energy on the small stuff. Realise what is important to you for life is precious and goes by in a flash.  

I believe Mark Twain had the right idea when he said: "Twenty years from now you'll be more disappointed by the things you didn't do, than by the ones you did do. So throw off the bowlines. Sail away from the safe harbour. Catch the trade winds in your sails. Explore. Dream. Discover."

I hope you'll continue to stay with me as I blog on Fridays, sharing my journey and experiences with you along the way. Until then I bid you adieu, and wish you a happy and healthy new year. May 2014 be everything you wished for.

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